{"id":12891,"date":"2021-07-02T19:12:52","date_gmt":"2021-07-02T22:12:52","guid":{"rendered":"https:\/\/portaldasaudenews.com\/?p=12891"},"modified":"2021-07-02T19:12:52","modified_gmt":"2021-07-02T22:12:52","slug":"bebe-de-5-meses-tem-doenca-rara-que-transforma-corpo-em-pedra","status":"publish","type":"post","link":"https:\/\/portaldasaudenews.com\/?p=12891","title":{"rendered":"Beb\u00ea de 5 meses tem doen\u00e7a rara que transforma corpo em \u201cpedra\u201d"},"content":{"rendered":"

 <\/p>\n

Os pais de uma beb\u00ea brit\u00e2nica de apenas 5 meses est\u00e3o em uma campanha de conscientiza\u00e7\u00e3o para dar maior visibilidade a uma doen\u00e7a rara conhecida como FOP, abrevia\u00e7\u00e3o para Fibrodisplasia Ossificante Progressiva.<\/span><\/p>\n

A condi\u00e7\u00e3o faz com que os m\u00fasculos, os tend\u00f5es e os ligamentos sejam paulatinamente substitu\u00eddos por ossos. Em um primeiro momento, isso dificulta os movimentos e, com o passar do tempo, os paralisa, por isso se diz que o corpo das pessoas acometidas pela FOP se transforma em \u201cpedra\u201d.<\/span><\/p>\n

Lexi Robins nasceu em janeiro deste ano e seus pais come\u00e7aram a desconfiar de que havia algo errado ao perceberem que ela mexia muito pouco os dedos do p\u00e9. Realizando pesquisas, eles chegaram em um especialista brit\u00e2nico sobre o problema, que sugeriu uma investiga\u00e7\u00e3o gen\u00f4mica.<\/span><\/p>\n

H\u00e1 15 dias, o resultado da an\u00e1lise feita nos Estados Unidos confirmou que a menina sofre de FOP. \u201cO gene que procuravam era o gene ACR1 e, infelizmente, \u00e9 o gene que ela tem\u201d, lamentou Alex Robins, pai de Lexi, em entrevista ao <\/span>The Mirror<\/span><\/a>.<\/span><\/p>\n

N\u00e3o existe cura para a doen\u00e7a ou maneira de evitar o seu desenvolvimento e, por isso, \u00e9 comum que os pacientes fiquem confinados a uma cadeira de rodas ou a uma cama ap\u00f3s os 20 anos de idade. Um trauma causado por uma queda pode agravar o problema, o que limita bastante a vida deles tamb\u00e9m na inf\u00e2ncia.<\/span><\/p>\n

Para enfrentar a situa\u00e7\u00e3o, os pais de Lexi decidiram expor o caso da filha. O prop\u00f3sito deles \u00e9 incentivar pesquisas sobre o problema.<\/span><\/p>\n

\u201cH\u00e1 uma grande comunidade de outros pais que t\u00eam filhos com FOP e um dos pais come\u00e7ou esta institui\u00e7\u00e3o de caridade chamada FOPFriends, e tudo o que eles conseguem, doam para a pesquisa para tentar apress\u00e1-la. Esse \u00e9 o nosso objetivo, ajud\u00e1-los a aumentar a conscientiza\u00e7\u00e3o e a levantar fundos. Foi absolutamente doloroso, mas tivemos o apoio deles\u201d, desabafou Alex. ( Com informa\u00e7\u00f5es do Metropoles.com)<\/span><\/p>\n

 <\/p>\n

*Foto: Pixabay<\/p>\n

 <\/p>\n","protected":false},"excerpt":{"rendered":"

  Os pais de uma beb\u00ea brit\u00e2nica de apenas 5 meses est\u00e3o em uma campanha<\/p>\n","protected":false},"author":1,"featured_media":12893,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"om_disable_all_campaigns":false,"_monsterinsights_skip_tracking":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":""},"categories":[44],"tags":[],"class_list":["post-12891","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-curiosidades"],"yoast_head":"\nBeb\u00ea de 5 meses tem doen\u00e7a rara que transforma corpo em \u201cpedra\u201d - Portal da Sa\u00fade News<\/title>\n<meta name=\"description\" content=\"A condi\u00e7\u00e3o faz com que os m\u00fasculos, os tend\u00f5es e os ligamentos sejam paulatinamente substitu\u00eddos por ossos. 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